Experience Sharing: Difference between revisions
From Pharmacopedia
More actions
| [unchecked revision] | [unchecked revision] |
MDElliottMD (talk | contribs) Modernize Experience Sharing: rename indications->problems (3 spots + SuggestIndication->SuggestProblem); document <vote> single/multi modes; add 'Beyond per-medicine reports' section pointing at Special:MyProfile / MyLifeStory / MyAssessment / MyCohorts / MyShareLog; expand Privacy with the 4-level visibility mode, cohorts, link tokens, reciprocal sharing, share-log; soften 'no demographic information' to acknowledge opt-in profile-side demographics; strip all em-dashes per the standing proj... |
MDElliottMD (talk | contribs) No edit summary |
||
| Line 8: | Line 8: | ||
== What experience sharing is == | == What experience sharing is == | ||
Every medicine page on Pharmacopedia carries '''two parallel streams''' of experiential data, kept rigorously separate everywhere they're rendered: | Every [[Category:Medicine|medicine page]] on Pharmacopedia carries '''two parallel streams''' of experiential data, kept rigorously separate everywhere they're rendered: | ||
* '''Personal''', anyone who has taken (or is taking) the medicine themselves. | * '''Personal''', anyone who has taken (or is taking) the medicine themselves. | ||
* '''Clinical''', verified healthcare providers prescribing or managing it. | * '''Clinical''', verified healthcare providers prescribing or managing it. | ||
A medicine's profile is the platform for both perspectives. The lived experience of the people who use the meds and the people who prescribe them will hopefully accumulate with sufficient numbers such that different | A medicine's profile is the platform for both perspectives. The lived experience of the people who use the meds and the people who prescribe them will hopefully accumulate with sufficient numbers such that several different sorts of truth emerge.<br><br>Pharmacopedia is trying to hone in on them all, however we can, and maybe find precision and accuracy in this space so long devoid of granular information. | ||
== For everyone: the personal-perspective surfaces == | == For everyone: the personal-perspective surfaces == | ||
You don't need any verification to share personal experience. Just 2-Factor Authentication (TOTP | You don't need any verification to share personal experience. Just 2-Factor Authentication (TOTP +/- passkey). Anything you add is reviewed by moderators before it becomes part of a page's public profile, at least for now. | ||
=== 1. Rate an effect === | === 1. Rate an effect === | ||
Every medicine page lists named effects (sleepiness, appetite | Every medicine page lists named effects (sleepiness, appetite suppression, libido, etc.) using the <code><effect></code> tag. Click any effect to expand its controls: | ||
* '''Did you experience it?''' yes / no | * '''Did you experience it?''' yes / no | ||
* ''' | * '''How as it?''' positive / neutral / negative | ||
The medicine's page aggregates everyone's answers into a frequency and a valence balance. | The medicine's page aggregates everyone's answers into a frequency and a valence balance. | ||